- Intracranial vascular malformations (IVMs) cause over one third of spontaneous (non-traumatic) intraparenchymal brain haemorrhage in young adults, making them the leading cause in this age group. IVMs can cause recurrent intracranial haemorrhage, epilepsy and chronic disability.
- Despite their importance, there is uncertainty about the untreated clinical course of IVMs and the prognosis they carry for specific individuals. Furthermore, the evidence supporting existing interventions for IVMs is composed of case series (usually without a control group), which makes treatment decisions extremely difficult.
- Because of the potential for variation in patient management, the priorities for the evaluation of health services for patients with IVMs are to:
- monitor equity of access to treatment
- monitor patterns of intervention
- monitor the outcomes of patients who do and do not receive interventional treatment (and thereby monitor the beneficial and adverse effects of these interventions)
- assess the health economics of treatment use
- strive for quality improvement in clinical services in Scotland
- Therefore, a multidisciplinary collaborative steering committee, representative of the four neuroscience centres in Scotland, patients, and general practitioners (GPs), is conducting a nationwide, prospective, population-based register of IVMs: the Scottish Audit of Intracranial Vascular Malformations (SAIVMs). SAIVMs is a continuation of the audit core of a preceding project, called the Scottish Intracranial Vascular Malformation Study (SIVMS), that had similar methods and objectives.
- SAIVMs is a continuation of the audit core of a preceding project, called the Scottish Intracranial Vascular Malformation Study (SIVMS). SIVMS continues as an observational epidemiological project, which uses anonymised data extracted from SAIVMs.